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Eli's story (by Tyler Barnes)

My 5-year old nephew has been suffering with muscular dystrophy since the day he was born. His entire life has been an uphill battle to do the things that we all take for granted, like being able to eat food and even lift his own head. He has recently started Primary school and needs his Father (my Brother) to teacher-aide for him. This recent documentary shows 'A day in the life of Eli' and we're proud of how far he has come. But there is still so much support he, and my family, and other MD families need. You can follow Eli's journey here.

Published: 30th June, 2021

Updated: 26th January, 2022

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    Tyler Barnes' five-year-old nephew Eli was diagnosed with muscular dystrophy at birth. Although his day-to-day life has been a struggle, he continues to hit some incredible milestones.

  • Eli's story (by Tyler Barnes)

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  • About Us

    About Us

    The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led orgnisation established by New Zealanders with lived experience of neuromuscular conditions.   Starting in the 1950’s as a support group for families affected by muscular dystrophy is now the leading source of information and support to our community.

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